Looking for participants for a research study on the effects of exercise at anaerobic threshold on post exertional malaise in individuals with ME/CFS.

An exciting opportunity has arisen for Rebecca Otte under the supervision of Dr Lynette Hodges to conduct a research project at Massy University Sport and Exercise labs in Palmerston North to continue the research into exercise and its effects on ME/CFS patients.

Exercise often has a positive relationship with health and wellbeing particularly with the management and prevention of disease, reducing risk factors for chronic conditions, reduce fatigue levels and improve quality of life. However, in stark contrast to healthy individuals exercise exaggerates negative symptoms in those with CFS/ME.

Through this study we are wanting to assess the effect of exercising to anaerobic threshold on fatigue and symptoms of PEM within ME/CFS. The effects will be assessed through a graded exercise (until anaerobic threshold) test and the effects physiologically, on cognitive function and fatigue will be assessed. The hope is to understand how much those with ME/CFS can increase their heart rate without exhibiting symptoms of PEM, which will ideally provide individuals with a safe intensity for exercise. From this research we are hoping to discover a way in which symptoms of PEM can be reduced and therefore lead to individuals with CFS/ME to manage their condition better and have a greater quality of life.

The participants involved in this study will be required to attend three visits to the Sport and Exercise labs at Massey University in Palmerston North. The trial will likely commence early in the new year (January 2019). Anybody interested in taking part will need to be between the ages of 18-64 and will be required to complete three tests over the course of the three visits. The first visit will consist of a maximal exercise test. From this test, anaerobic threshold will be determined. The following two visits will entail two submaximal exercise tests, 24 hours apart. For this trial to go ahead we require the help of 20 individuals who have CFS/ME. We are hoping to provide some koha in appreciation for your time and commitment to the study.

If you are interested in volunteering as a participant for this trial but are unsure if you meet the criteria or would like some more information regarding the testing, feel free to contact either Dr Lynette Hodges via email on L.D.Hodges@massey.ac.nz or Rebecca Otte (Masters Student) on rotte1998@gmail.com

To express your interest for the trial please complete the De Paul Symptom Questionnaire using the link below:

https://qasiasingleuser.asia.qualtrics.com/SE/?SID=SV_1AnQQwTwtz68Kax

 

International Expert Karl Morten Speaking in Auckland – Developments in Understanding the Science Behind ME/CFS

International Expert Karl Morten is Speaking in Auckland on the 12th of December on the Developments in Understanding the Science Behind ME/CFS.

ANZMES encourages members in the Auckland area to go along to hear this excellent speaker. PLEASE NOTE that the venue has been changed – see updated Flyer – 
RSVP’s to janet.m@meauckland.org.nz

ANZMES Annual General Meeting 10th November 2018.

Welcome to ANZMES

 

 

 

ANZMES Annual General Meeting will be held on Sat 10th of November at 1 pm in Dunedin Community House (Upstairs in the ‘Alexander McMillan Room’) at 301 Moray Place, Dunedin. Guest Speakers are Dr Ros Vallings (ME/CFS Specialist) speaking on the latest ME/CFS research and Dr Nicola Swain (President).  “All Welcome”. RSVP to info@anzmes.org.nz. or ring (03) 471 6203.

Dr Ros Vallings Itinerary for the next few months

 

 

Dr Ros Vallings Itinerary Below

 

 

6th October 2018
ME Auckland – Annual General MeetingQuestion and Answer session

Time:     1.30pm to 3.00pm

Venue:    Sandringham Community Centre Mainhall

Address: 18-20 Kitchener Rd, Sandringham, Auckland , 1025

(If you are able, please bring a shared plate for afternoon tea)

If you would like to know more details phone 0800 632 553
________________________________________________________________________________________

31st October 2018
Canterbury ME/CFS Group – Latest Research Update

Time: 1.30 pm

Venue: Abberley Park Hall,

Address: 55 Abberley Crescent, St Albans Christchurch

If you would like to know more details phone 03-365-5887
__________________________________________________________________________

2nd November 2018
Rotorua support group – Latest Research Update

Time:  10.30 am

Venue:  Parksyde Community Centre

Address:  7-9 Tarewa Place (off Pukuatua Street),  Rotorua.

If you would like to know more details phone. Tina: tina@ccisupport.org.nz
________________________________________________________________________
10th November 2018

ANZMES Annual General Meeting in DUNEDIN – Latest Research Update & Q & A Time
Also come and hear ANZMES President Dr Nicola Swain.

Time: 1 pm

Venue:  Alexander McMillan Room – Upstairs Community House

Address: 301 Moray Place, Dunedin

If you would like to know more details phone Debbie 03-4176203
_________________________________________________________________________

24th  November 2018
MEISS Annual General Meeting – Latest Research Update

Time: 1 pm

Venue:  Alexander McMillan Room – Upstairs Community House

Address: 301 Moray Place, Dunedin

If you would like to know more details phone Heather 03-471 6169
___________________________________________________________________________

 

Nelson Bays ME/CFS & FM Support Group – Latest Research Update
Yet to be finalised.

Tentatively the 11th or 12th February 2019 – (2 meetings – support group and GPs) –

A New ME/CFS Support Group is Starting Up in Drury Auckland

The first ME/CFS Support Group meeting for the Drury area will be held on the 13th of October 2018.

Time:             1.00 pm

Venue:         Redshed Palazzo  www.redshedpalazzo.co.nz Drury

All who are interested are most welcome.

For more information email Annette Spence at annetteeb@xtra.co.nz

Dr Ros Vallings will be Speaking in Christchurch in October

ANZMES is sponsoring Dr Vallings to this event.

 

ME/CFS Group (Canterbury) Inc. is hosting a meeting with Dr Ros Vallings who will be bringing everyone up to date with the latest research.

Meeting details below.

Date:  31st Oct at 1.30

Venue: Abberley Park Hall,

Address: 55 Abberley Crescent, St Albans Christchurch

If you would like to know more details phone 03-365-5887

See map to get to venue below.

Complex Chronic Illness Biennial Seminar with Dr Ros Vallings – August 25

You are invited to attend the Complex Chronic Illness Biennial Seminar to hear guest speaker, Dr Ros Vallings (NZ’s leading expert on ME/CFS), report on the 13th International ‘Invest in ME Research’ Conference, held in London, June 2018.

Date:  August the 25th

Time: 11:00 am.

Venue: Otumoetai Baptist Church (auditorium) 241 Otumoetai Road Tauranga, 3110

Morning tea is available from 10:45 am.

The seminar will start at 11:30 am.

All welcome gold coin donation appreciated.

Contact us at: ‘info@ccisupport.org.nz’ for further information.

Dr Ros Vallings Speaking Engagement in Hamilton

Dr Vallings is renowned world-wide for her outstanding work with ME/CFS/Fibromyalgia patients, having won several international awards
Venue:
Melville Methodist Church,
Corner Bader St and Normandy Ave,
Melville Hamilton.
Topic: Research from the recent ‘Invest in ME’  conference held in London recently; and discussion re: use of B12
Date:    Thursday 9th August
(please note change of Date,)
TIme:    10.30 – 11.30

 

All Very Welcome!