Rotorua Support Group Meeting – Report on the London conference –

Rotorua GroupThe Rotorua ME/CFS Support Group

will be holding a meeting on the 21st of August 2015 at

The venue is at the Bainbridge Centre, Old Taupo Rd, Rotorua.

Guest Speaker will be Dr Ros Vallings, who will be presenting her report on the 10th International ME Conference which was held recently in London.



Afternoon Tea will be provided.

All Welcome!

Book on ME/CFS for Young People

Dr Ros Vallings has just published her new book
Managing ME/CFS – A Guide for Young People
It is available from Calico Publishing  for $29.95

If you are a young person who has just been diagnosed with ME or
CFS you will find a sympathetic voice in this book.

* Clearly explains this complicated illness
* Includes stories from young people
* Packed with great tips
* Shows you how to create the
* Best chance for recovery.

A ‘must read’ for adolescents and adults alike. – Dr Nancy Klimas
Professor Emerita, University of Miami School of Medicine,
United States

Dr Vallings

Dr Vallings new book
Dr Vallings new book

10th Invest in ME International ME Conference


ANZMES sponsored Dr Vallings to attend the IIMEC Conference.

The 10th Invest in ME International ME conference was held on the 29th of May this year in London with speakers.
Dr. Ian Gibson – Chair
Professor Ian Charles (Keynote Speech) Solving ME: What a Research Park Has to Offer in Resolving a Chronic Disease
Professor Mady Hornig Markers of Immunity and Metabolism in ME/CFS
Professor Jonas Bergquist Proteomics in ME/CFS
Dr. Luis Nacul Incidence and Prevalence of ME
Dr. Amolak Bansal Diagnosis and Differential Diagnosis: Combining clinic and research
Professor Sonya Marshall-Gradisnik, Dr Don Staines (To be confirmed) Update from National Centre for Neuroimmunology and Emerging Diseases – NCNED
IiME Projects Student Researchers: The Next Generation
Dr. Jo Cambridge B-cell biology and ME/CFS
Dr. Neil Harrison Immune-Brain Communication and Relationship to Inflammation
Dr. John Chia ME and Chronic Enterovirus Infection: An Update on pathogenesis.
Dr. Claire Hutchinson Biomarkers for ME: Visual Processing and ME/CFS
Professor Betsy Keller Molecular markers before/after exercise /Activity guidelines to avoid symptom flares
Dr. Oystein Fluge, Professor Olav Mella Multi-centre Rituximab Clinical Trial for ME/CFS

Please see Dr Vallings Report from the Conference below.

10th Invest in ME International ME Conference Ros Vallings


Mark on you Calendars – Annual General Meeting – 7th November 1PM

The Annual General Meeting has been Scheduled for the 7th of November at 1PM at the Independent Living Services Conference Facility Room which is half way down the drive at 14 Erson Ave Royal Oak Auckland.

Professor Warren Tate will be speaking about his research into finding a Bio Marker so that a definitive will be made possible to allow Doctors to make a diagnoses more easily.  The research group are examining thousands of molecules and blood cells and in plasma to identify biochemical pathways that may not be functioning properly.  Dr Ros Vallings will be speaking about the latest research on ME/CFS that has been released internationally .

All welcome.

A hot drink and afternoon tea will follow the meeting.

Independent Living services

Dr Kathy Rowe – Understanding Young People and ME/CFS

Link – To purchase Dr Rowe’s DVD – DVD cost $10

Dr Kathy Rowe, a top Australian Paediatrician toured New Zealand in November 2014.

Over the past 44 years, she has achieved outstanding national and international recognition for her work in adolescent health.

Kathy is widely acclaimed as a caring, dedicated consultant physician, in the Centre for Adolescent Health at Melbourne’s Royal Children’s Hospital. She has also held academic appointments in the University of Melbourne’s Department of Paediatrics, involved in teaching, research and clinical work.

She is an expert in the area of chronic fatigue syndrome, having worked tirelessly and championed its cause when it was not fashionable.

Neil Morris kindly produced a DVD for ANZMES and this can be purchased from the link posted above.

Institute of Medicine – Evidence Base for ME/CFS

Institute of Medicine of the National Academies

The Department of Health and Human Services (HHS), the National Insti­tutes of Health, the Agency for Healthcare Research and Quality, the Centers for Disease Control and Prevention, the Food and Drug Administration, and the Social Security Administration asked the Institute of Medicine (IOM) to convene an expert committee to examine the evidence base for ME/CFS. In Beyond Myal­gic Encephalomyelitis/Chronic Fatigue Syndrome: Redefining an Illness, the com­mittee proposes new diagnostic criteria that will facilitate timely diagnosis and care and enhance understanding among health care providers and the public.

A comprehensive coverage can be found on this link below

Institute of Medicine Report

Please see Dr Charles Shepherd Response to the report on the link below

Charles Shepherd Response

Gluten-Free Food and Allergy Show Hamilton

A Gluten-Free Food & Allergy Show will be held in Hamilton,

21 – 22 March 2015

Among the numerous symptoms ME/CFS sufferers may have to contend with are digestive problems, e.g. irritable bowel syndrome (IBS), and sensitivities to certain foods. Member Jeannie Scott attended the 2014 GlutenFree Food and Allergy Show in Auckland and found it very informative and useful. There were over 70 exhibitors offering free samples of their food and products, as well as a range of interesting speakers covering a range of topics of interest to those affected by ME/CFS including: diagnosing and managing IgE mediated food allergy; understanding food allergy and food intolerance; successful gluten free baking; FODMAP-friendly food; cooking for allergies made easy with 4 ingredients. While this show has been held in Auckland in the past, the good news is that it will also be held in Hamilton this year. Put the date in your diary if you suffer from digestive problems; IBS; allergy to nuts, dairy, eggs, etc; intolerance to lactose, dairy, gluten, wheat, etc. There will again be foods and products to sample for free, as well as specials on foods and other products. Free seminars will cover topics including: • How to adapt recipes • How to get the nutrition you need • How to diagnose allergies and intolerances • How to cope with IBS • There will be opportunities to speak directly with the experts about your concerns. Teams from Allergy NZ and other organizations will be in attendance. The show is on Saturday 21st and Sunday 22nd March from 10am to 5pm both days, at the Claudelands Exhibition & Events Centre, cnr Brooklyn Road and Heaphy Terrace, Hamilton. Cost: $10 (children under 10 years free) Entry includes seminar attendance See website for more details

Ros Valling Rotorua Speaking Engagement

Dr Ros Vallings - New Zealand Order of Merit
Dr Ros Vallings – New Zealand Order of Merit

Ros will be Speaking about Pain

The Meeting will be held on Friday  6th  March 2015 and commence at 2.00 pm at the Bainbridge Centre, Old Taupo Road, Rotorua,

There is no charge for attending this seminar but  donations are gratefully received to cover the costs of advertising, refreshments and venue hire.



Dr Vallings Speaking in Whangarei in February.


Dr Ros Vallings (New Zealand Order of Merit)

Feb 23rd 2pm.

Come hear an International expert on Chronic Fatigue Syndrome talking about diagnosis and treatment of Myalgic Encephalopathy / Chronic Fatigue Syndrome.
Forum North Whangarei. 7 Rust  Ave, Vinetown, Whangarei  Northland 0110

All welcome
Entry by koha