Public Meetings that Local Support Groups are Hosting are as follows:
(Medical Specialists and General Practitioners have also been invited to these meetings)
Auckland 6th April 1pm – 3pm
Auckland CCS Disability Action
Kauri Room (Bottom of the Drive)
14 Erson Avenue
Royal Oak, Auckland
Napier 1st April 10.30 – 12 noon
Napier – Hawkes Bay
East Community Hall
83 Tait Drive
Nelson 29th March 10.30 – 12.00
Nelson – IACFS Bks
Nelson Suburban Club, 29th March
168 Tahunanui Drive,
Dunedin 28th March 10.30 – 12 noon
Dunedin Community House
Alexander McMillan Room
Medical Professionals ONLY Meetings: –
GP’s have been sent invites for these meetings.
Contact Local CME Group for more details:
Wellington 31st March 1.30 – 3.00 pm
Hamilton 4th April 5.30 – 7.00 pm
Rotorua 3rd April 7.30 – 9.00 pm
Dunedin 27th March 6.00 – 7.30 pm
For More Information contact your local Support Group
or Contact Debbie either by
Email – firstname.lastname@example.org
Phone – 03 471 6203
Dr Ros Vallings who has just come back from the International IACFS Conference with a prestigious award will be speaking in Rotorua on 2nd Dec at 2 pm at the Bainbridge Centre.
TOPIC: Overview of the Florida conference.
Courageous Deeds is a fundraiser challenging ten leaders with a passion for diversity and making a difference to head BACK TO SCHOOL for a day to raise awareness for young adults and teens with Chronic Fatigue Syndrome (ME/CFS) who have missed out on their youth and schooling due to this crippling and misunderstood illness.
Funds raised will go to support ME/CFS sufferers in the Auckland region.
Please click on image below for more information regarding ME Auckland
If you would like to participate in this fundraiser
please check out this link below to our
ANZMES SURVEY 2016 –
To be completed and sent in by the 5th December 2016
Survey link is:
There are some key points that it will be useful for you to understand before filling out the survey.
- It is totally voluntary to complete the survey.
- Completion of the survey is anonymous and so we will not know who has completed the survey or be able to link a person with their responses.
- All the responses will be joined together so only group information will be used.
- The final statistics from the survey will be shared with others. For example it may be shared with the media via a press release. This information will also be used for lobbying.
We are aware that ME/CFS has a large impact is a variety of areas and so we could have included many areas in this survey, however, we are also aware that completing a long survey would not be possible for many people with ME/CFS and so we have not been able to include all the areas.
We would encourage you to complete the survey, as the more people who complete the survey the more notice others will take of the results. If you know others with ME/CFS please encourage them to complete the survey as well.
The results will be summarised in the Meeting Place and on the ANZMES website.
The ANZMES Annual General Meeting will be held on
the 26th November 2016
Time: – 1.00pm.
Venue: – Auckland CCS Disability Action, Kauri Room – (Bottom of Drive)
14 Erson Avenue, Royal Oak, Auckland. The centre, which overlooks One Tree Hill, is close to the airport and the Royal Oak Shopping Centre. It has plenty of car parking and is well serviced by local buses. If you have any queries please telephone Debbie on 09 269634 or 03 4716203
At 1.30pm our guest speaker Dr Lynette Hodges Lecturer in Exercise and Sport Science from Massey University will share about her research into assessing responses to repeated exercise testing in patients with ME/CFS. This is being done along with Professor Warren Tate from the Otago University who is carrying out research in finding a biomarker for ME/CFS. Other tests being performed are arterial stiffness assessment, blood samples, brief neuropsychological tests, exercise testing lasting for approximately 12 minutes on a cycle ergometer and an exercise recovery questionnaire.
Our next speaker Dr Ros Vallings will share the very exciting news coming out in a number of research studies internationally which are confirming with one another definite Biomarkers for ME/CFS.
WellMe Wellington are holding their AGM on the 6th September 2016.
Dr Ros Vallings will be speaking at 1.20 after the AGM
Level 1, Anvil House, Wakefield Street, Wellington.
Public transport from all districts nearby and carparking available at Wellington City Council carpark opposite venue.
Refreshments provided. Gold coin donation/koha.
Dr Vallings will be in Hamilton on Thursday 11th August 2016 at the Methodist Church corner of Bader St and Normandy Ave, Melville, Hamilton. 10.30am to 12.00 mid day.
To register please phone Tracey Larsen on 07 8344745 or email email@example.com
Researchers and Health Professionals from New Zealand have featured on page 46 of the latest liME Journal. Those mentioned are;
Warren P. Tate, Eiren C. Sweetman, Alex J. K. Noble, Christina D. Edgar, Grace Bateman, Angus Mackay, Margaret M. Ryan, Lynette D. Hodges & Rosamund Vallings.
Department of Biochemistry,
Department of Anatomy, University of Otago, Dunedin & Brain Health
Research Centre and Brain health New Zealand,
School of Sport and Exercise, Massey University, Palmerston North,
& Howick Health and Medical Centre, Auckland.
Please see link below
The 12th of May is ME Day and this is a time when we encourage our members or those who wish to support us, by writing a letter to local Members of Parliament to make them aware of ME/CFS in the community.
If you would like to take part please download the form letter, fill it in by following the procedures below and send in to your local MP. We thank you for your support.
- Fill in your name and address
- Fill in the name of your MP
- Sign the letter
- Address the envelope
- Post the letter, there is no postage needed on letters addressed to MP’s at Parliament Building, Wellington.
v Address the envelope:
Member of Parliament’s name
Private Bag 18888
You do not need to affix a postage stamp.
Post the letter.
Your letter will count. It may take time, but there is influence in the number of letters received
Dr Vallings will be holding meetings in regions around the North Island during the months of May, June, August and September.
See contact people for your region below for more details.
6th May – Rotorua – contact Ann Lemon 0800 632 377
25th June – Tauranga – contact Jackie Bassett (07) 811 480
11th Aug – Hamilton – contact Tracey Larsen (07) 834 4745
6th Sept – Wellington – contact Catherine Entwistle (04) 232 4033
17th Sept – Auckland – Arthritis/FM group – details to be arranged
Check in again, more information to follow.