ANZMES Survey 2016

September 19, 2016  |  Events, News  |  Comments Off on ANZMES Survey 2016

ANZMES SURVEY 2016 –

To be completed and sent in by the 5th December 2016

Survey link is:
http://www.surveygizmo.com/s3/3001586/New-Survey

There are some key points that it will be useful for you to understand before filling out the survey.

  1. It is totally voluntary to complete the survey.
  2. Completion of the survey is anonymous and so we will not know who has completed the survey or be able to link a person with their responses.
  3. All the responses will be joined together so only group information will be used.
  4. The final statistics from the survey will be shared with others.  For example it may be shared with the media via a press release. This information will also be used for lobbying.

We are aware that ME/CFS has a large impact is a variety of areas and so we could have included many areas in this survey, however, we are also aware that completing a long survey would not be possible for many people with ME/CFS and so we have not been able to include all the areas.

We would encourage you to complete the survey, as the more people who complete the survey the more notice others will take of the results. If you know others with ME/CFS please encourage them to complete the survey as well.

The results will be summarised in the Meeting Place and on the ANZMES website.

 

Dr Vallings Speaking at Arthritis Meeting

September 12, 2016  |  News  |  Comments Off on Dr Vallings Speaking at Arthritis Meeting

arthritis-nz

 

 

 

‘Focusing on Pain and Fibromyalgia’

 

To he held at: The University of Auckland

Date: Saturday 17th September 2016

Time: 10am – 12.30pm

Venue: Gate 1 Building 730, Room 220
The University of Auckland Clinics
Tamaki Innovation Campus
261 Morrin Road, St Johns
Auckland

Topic:
A summary of tips to manage arthritis and reduce pain

Guest Speaker
Dr Rosamund Vallings who is a GP with a specialty in Fibromyalgia and Chronic Fatigue and is an international expert and presenter in these conditions.

Dr Vallings will be giving the latest in research and treatment of Fibromyalgia and Chronic fatigue including information from the international ME Conference 2016 in London UK. She will of course be talking about how to manage these frustrating conditions and the fatigue from inflammatory arthritis.

The second presentation of this seminar

Topic:

A summary of tips to manage arthritis and reduce pain with Georgina Greville,

RN Arthritis Educator. AUT on Wednesday 21st September
Dr Lawrence Teoh Rheumatologist will talk about Osteoarthritis.

Dr Teoh, is a Rheumatologist in private practice at Medical Specialists Group in Epsom. He has a special interest in the non-operative treatment of knee and hip Osteoarthritis.

The topics he will cover are:

Main risk factors for Osteoarthritis; Understanding osteoarthritis pain.

Current approach for the non-operative treatment of knee and hip Osteoarthritis. The need for a paradigm shift with a community / public health approach.

 

Annual General Meeting – Guest Speakers Dr Lynette Hodges & Dr Ros Vallings

September 8, 2016  |  Events, News  |  Comments Off on Annual General Meeting – Guest Speakers Dr Lynette Hodges & Dr Ros Vallings

The ANZMES Annual General Meeting will be held on

the 26th November 2016

Time: – 1.00pm.

Venue: – Auckland CCS Disability Action, Kauri Room – (Bottom of Drive)
14 Erson Avenue, Royal Oak, Auckland. The centre, which overlooks One Tree Hill, is close to the airport and the Royal Oak Shopping Centre. It has plenty of car parking and is well serviced by local buses. If you have any queries  please telephone Debbie on 09 269634 or 03 4716203

Map AGM

At 1.30pm our guest speaker Dr Lynette Hodges Lecturer in Exercise and Sport Science from Massey University will share about her research into assessing responses to repeated exercise testing in patients with ME/CFS. This is being done along with Professor Warren Tate from the Otago University who is carrying out research in finding a  biomarker for ME/CFS. Other tests being performed are arterial stiffness assessment, blood samples, brief neuropsychological tests, exercise testing lasting for approximately 12 minutes on a cycle ergometer and an exercise recovery questionnaire. 

Our next speaker  Dr Ros Vallings will share the very exciting news coming out in a number of research studies internationally which are confirming with one another definite Biomarkers for ME/CFS.

 

 

Dr Vallings Report on Recent Invest ME Conference in London.

July 14, 2016  |  Events, News  |  Comments Off on Dr Vallings Report on Recent Invest ME Conference in London.

Dr Vallings

Dr Vallings will be in Hamilton on Thursday 11th August 2016 at the Methodist Church corner of Bader St and Normandy Ave, Melville, Hamilton. 10.30am to 12.00 mid day.

To register please phone Tracey Larsen on 07 8344745 or email tracey@mswaikato.org.nz

Dr Ros Vallings Report on the INVEST in ME Conference in London

June 20, 2016  |  News, Research  |  Comments Off on Dr Ros Vallings Report on the INVEST in ME Conference in London

Conference-Events-2016

We are very happy to bring Dr Ros Vallings Report on the Invest in ME Conference which was held in London on the 1st and 2nd of June 2016. Please click on the link below to view.

Invest in ME Conf 2016 by ROS Vallings

 

New Zealand Research into ME/CFS Featured in the liME Volume 10 Issue – Journal

June 8, 2016  |  Events, News  |  Comments Off on New Zealand Research into ME/CFS Featured in the liME Volume 10 Issue – Journal

Researchers and Health Professionals from New Zealand have featured on page 46 of the latest liME Journal.  Those mentioned are;

Warren P. Tate, Eiren C. Sweetman, Alex J. K. Noble, Christina D. Edgar, Grace Bateman, Angus Mackay, Margaret M. Ryan, Lynette D. Hodges & Rosamund Vallings.

Departments involved.

Department of Biochemistry,

Department of Anatomy, University  of Otago, Dunedin & Brain Health

Research Centre and Brain health New Zealand,

School of Sport and  Exercise, Massey University,  Palmerston North,

& Howick Health and Medical Centre, Auckland.

Please see link below

Invest ME liME Volume 10 Journal

ANZMES Awareness Poster

May 9, 2016  |  News  |  Comments Off on ANZMES Awareness Poster

This year our focus is on Youth with ME/CFS and we have a new poster which is especially aimed at capturing the attention of youth who may suffer from ME/CFS – If you would like to promote ME Awareness among youth, posters are available through us.

Capture

ME Awareness Day the 12th of May – Letter to Parliament

May 6, 2016  |  Events, News, Uncategorized  |  Comments Off on ME Awareness Day the 12th of May – Letter to Parliament

The 12th of May is ME Day and this is a time when we encourage our members or those who wish to support us, by writing a letter to local Members of Parliament to make them aware of ME/CFS in the community.

If you would like to take part please download the form letter, fill it in by following the procedures below and send in to your local MP. We thank you for your support.

button

  • Fill in your name and address
  • Fill in the name of your MP
  • Sign the letter
  • Address the envelope
  • Post the letter, there is no postage needed on letters addressed to MP’s at Parliament Building, Wellington.

v    Address the envelope:

Member of Parliament’s name
Parliament Office
Private Bag 18888
Parliament Buildings
Wellington 6160

You do not need to affix a postage stamp.

Post the letter.

Your letter will count. It may take time, but there is influence in the number of letters received

Dr Vallings North Island Meetings Scheduled

April 12, 2016  |  Events, News  |  Comments Off on Dr Vallings North Island Meetings Scheduled

Dr Vallings

Dr Vallings will be holding meetings in regions around the North Island during the months of May, June, August and September.

See contact people for your region below for more details.

6th May – Rotorua – contact Ann Lemon 0800 632 377

25th June – Tauranga – contact Jackie Bassett (07) 811 480

11th Aug – Hamilton – contact Tracey Larsen (07) 834 4745

6th Sept – Wellington – contact Catherine Entwistle (04) 232 4033 

17th Sept – Auckland – Arthritis/FM group – details to be arranged

Check in again, more information to follow.

ME Group Link Christmas 2015

January 29, 2016  |  News  |  Comments Off on ME Group Link Christmas 2015

Here is a copy of the Christmas ME Group Link Newsletter for anyone interested in seeing what ME/CFS Groups from around the country are involved in.  If you click on the first Page you will be able to view the full Newsletter.

decnewslink2015