Dr Charles Lapp’s Presentation ‘An Overview of ME/CFS Diagnosis and Management’

As part of ME Awareness Month ANZMES is giving members and the general public the opportunity to view Dr Charles Lapp’s presentation held in Auckland on the 6th of April 2017.  The first video is doctor Lapp’s lecture “An overview of ME/CFS Diagnosis and Management”, and the second video covers the question and answer time from this meeting.

Dr Lapp – An Overview of ME/CFS Diagnoses & Management

Question & Answer Time

If you would like to purchase a DVD for your own use or to show to groups; a DVD can be purchased from Noel Morris who kindly videoed the Lecture for us.

To Purchase  Dr Charles Lapp’s DVD

Dr Charles Lapp on Radio NZ – Nine to Noon Show

ANZMES is pleased to announce that committee member Sandra Forsyth has arranged an interview with Dr Charles Lapp on Radio NZ – Nine to Noon show.

As mentioned in our last post Dr Lapp is on an ANZMES sponsored tour throughout NZ, holding lectures for GP’s, Specialists, ME/CFS support groups and the general public with a focus on an overview of ME/CFS.

Dr Lapp’s interview will be aired on Tuesday the 4th of April according to the schedule from RNZ from 11am – 12 noon

The 11 to 12 slot features Business Commentator Fran O’Sullivan

Chronic Fatigue Expert DR Charles Lapp

Media Commentator Gavin Ellis

From this we are picking that Charles Lapp will probably start his interview about 11.20 to 11.30

Many thanks to Sandra for helping with arranging this interview. There have been a lot of other articles from the media on the tour and we will put these in another post in the next week or so.

 

 

ANZMES Sponsored Tour – Doctor Charles Lapp from the USA

Public Meetings that Local Support Groups are Hosting are as follows:
(Medical Specialists and General Practitioners have also been invited to these meetings)

Auckland  6th April  1pm – 3pm
Auckland CCS Disability Action
Kauri Room (Bottom of the Drive)
14 Erson Avenue
Royal Oak, Auckland

Napier        1st April 10.30 – 12 noon
Napier – Hawkes Bay
Venue:  Greenmeadows
East Community Hall
83 Tait Drive
Greenmeadows

Nelson   29th March  10.30 – 12.00 
Nelson – IACFS Bks
Nelson Suburban Club,        29th March
168 Tahunanui Drive,
Nelson

Dunedin  28th March 10.30 – 12 noon
Dunedin Community House
Alexander McMillan Room
Moray Place
Dunedin

Medical Professionals ONLY Meetings: –
GP’s have been sent invites for these meetings.
Contact Local CME Group for more details:

Wellington 31st March 1.30 – 3.00 pm

Hamilton  4th April 5.30 – 7.00 pm

Rotorua   3rd April  7.30 – 9.00 pm

Dunedin 27th March  6.00 – 7.30 pm

For More Information contact your local Support Group
or Contact Debbie either by
Email – info@anzmes.org.nz
or
Phone – 03 471 6203

Dr Vallings Presentation ANZMES Annual General Meeting – Auckland

This presentation was held at the ANZMES Annual General Meeting in Auckland on the 26th November 2016. Dr Ros Vallings presentation focused on the IACFS Conference which was held in Fort Lauderdale, United States recently. Dr Vallings was presented with the Nelson Gantz Clinicians Award for Chronic Fatigue Syndrome/ Myalgic Encephalomyelitis at that conference. Some of the research that Dr Vallings covers in her presentation is how Glutathione impaired brain function in ME patients and how ME Patients have high protein levels in the CFS (Cerberus Spinal Fluid). She also covers how there is a difference in the molecular building blocks with ME/CFS patients known as 3 SNPS and much more.

DVDS can also be purchased for seminars, conferences from
DVDS Noel Morris

 

Dr Ros Vallings Speaking in Rotorua on the 2nd of December

dr-ros-vallings_main

 

Dr Ros Vallings who has just come back from the International IACFS Conference with a prestigious award will be speaking in Rotorua on 2nd Dec at 2 pm at the Bainbridge Centre.


TOPIC:
Overview of  the  Florida conference.

 

 

Courageous Deeds – Back to School 4 ME – Fundraiser for the Auckland Area

auckland-event

Courageous Deeds is a fundraiser challenging ten leaders with a passion for diversity and making a difference to head BACK TO SCHOOL for a day to raise awareness for young adults and teens with Chronic Fatigue Syndrome (ME/CFS) who have missed out on their youth and schooling due to this crippling and misunderstood illness.

Funds raised will go to support ME/CFS sufferers in the Auckland region.

Please click on image below for more information regarding ME Auckland

 

me-auckland

If you would like to participate in this fundraiser
please check out this link below to our

Give a Little Page

ANZMES Survey 2016

ANZMES SURVEY 2016 –

To be completed and sent in by the 5th December 2016

Survey link is:
http://www.surveygizmo.com/s3/3001586/New-Survey

There are some key points that it will be useful for you to understand before filling out the survey.

  1. It is totally voluntary to complete the survey.
  2. Completion of the survey is anonymous and so we will not know who has completed the survey or be able to link a person with their responses.
  3. All the responses will be joined together so only group information will be used.
  4. The final statistics from the survey will be shared with others.  For example it may be shared with the media via a press release. This information will also be used for lobbying.

We are aware that ME/CFS has a large impact is a variety of areas and so we could have included many areas in this survey, however, we are also aware that completing a long survey would not be possible for many people with ME/CFS and so we have not been able to include all the areas.

We would encourage you to complete the survey, as the more people who complete the survey the more notice others will take of the results. If you know others with ME/CFS please encourage them to complete the survey as well.

The results will be summarised in the Meeting Place and on the ANZMES website.

 

Dr Vallings Speaking at Arthritis Meeting

arthritis-nz

 

 

 

‘Focusing on Pain and Fibromyalgia’

 

To he held at: The University of Auckland

Date: Saturday 17th September 2016

Time: 10am – 12.30pm

Venue: Gate 1 Building 730, Room 220
The University of Auckland Clinics
Tamaki Innovation Campus
261 Morrin Road, St Johns
Auckland

Topic:
A summary of tips to manage arthritis and reduce pain

Guest Speaker
Dr Rosamund Vallings who is a GP with a specialty in Fibromyalgia and Chronic Fatigue and is an international expert and presenter in these conditions.

Dr Vallings will be giving the latest in research and treatment of Fibromyalgia and Chronic fatigue including information from the international ME Conference 2016 in London UK. She will of course be talking about how to manage these frustrating conditions and the fatigue from inflammatory arthritis.

The second presentation of this seminar

Topic:

A summary of tips to manage arthritis and reduce pain with Georgina Greville,

RN Arthritis Educator. AUT on Wednesday 21st September
Dr Lawrence Teoh Rheumatologist will talk about Osteoarthritis.

Dr Teoh, is a Rheumatologist in private practice at Medical Specialists Group in Epsom. He has a special interest in the non-operative treatment of knee and hip Osteoarthritis.

The topics he will cover are:

Main risk factors for Osteoarthritis; Understanding osteoarthritis pain.

Current approach for the non-operative treatment of knee and hip Osteoarthritis. The need for a paradigm shift with a community / public health approach.