Courageous Deeds – Back to School 4 ME – Fundraiser for the Auckland Area

auckland-event

Courageous Deeds is a fundraiser challenging ten leaders with a passion for diversity and making a difference to head BACK TO SCHOOL for a day to raise awareness for young adults and teens with Chronic Fatigue Syndrome (ME/CFS) who have missed out on their youth and schooling due to this crippling and misunderstood illness.

Funds raised will go to support ME/CFS sufferers in the Auckland region.

Please click on image below for more information regarding ME Auckland

 

me-auckland

If you would like to participate in this fundraiser
please check out this link below to our

Give a Little Page

ANZMES Survey 2016

ANZMES SURVEY 2016 –

To be completed and sent in by the 5th December 2016

Survey link is:
http://www.surveygizmo.com/s3/3001586/New-Survey

There are some key points that it will be useful for you to understand before filling out the survey.

  1. It is totally voluntary to complete the survey.
  2. Completion of the survey is anonymous and so we will not know who has completed the survey or be able to link a person with their responses.
  3. All the responses will be joined together so only group information will be used.
  4. The final statistics from the survey will be shared with others.  For example it may be shared with the media via a press release. This information will also be used for lobbying.

We are aware that ME/CFS has a large impact is a variety of areas and so we could have included many areas in this survey, however, we are also aware that completing a long survey would not be possible for many people with ME/CFS and so we have not been able to include all the areas.

We would encourage you to complete the survey, as the more people who complete the survey the more notice others will take of the results. If you know others with ME/CFS please encourage them to complete the survey as well.

The results will be summarised in the Meeting Place and on the ANZMES website.

 

New Zealand Research into ME/CFS Featured in the liME Volume 10 Issue – Journal

Researchers and Health Professionals from New Zealand have featured on page 46 of the latest liME Journal.  Those mentioned are;

Warren P. Tate, Eiren C. Sweetman, Alex J. K. Noble, Christina D. Edgar, Grace Bateman, Angus Mackay, Margaret M. Ryan, Lynette D. Hodges & Rosamund Vallings.

Departments involved.

Department of Biochemistry,

Department of Anatomy, University  of Otago, Dunedin & Brain Health

Research Centre and Brain health New Zealand,

School of Sport and  Exercise, Massey University,  Palmerston North,

& Howick Health and Medical Centre, Auckland.

Please see link below

Invest ME liME Volume 10 Journal

ME Awareness Day the 12th of May – Letter to Parliament

The 12th of May is ME Day and this is a time when we encourage our members or those who wish to support us, by writing a letter to local Members of Parliament to make them aware of ME/CFS in the community.

If you would like to take part please download the form letter, fill it in by following the procedures below and send in to your local MP. We thank you for your support.

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  • Fill in your name and address
  • Fill in the name of your MP
  • Sign the letter
  • Address the envelope
  • Post the letter, there is no postage needed on letters addressed to MP’s at Parliament Building, Wellington.

v    Address the envelope:

Member of Parliament’s name
Parliament Office
Private Bag 18888
Parliament Buildings
Wellington 6160

You do not need to affix a postage stamp.

Post the letter.

Your letter will count. It may take time, but there is influence in the number of letters received

Dr Vallings North Island Meetings Scheduled

Dr Vallings

Dr Vallings will be holding meetings in regions around the North Island during the months of May, June, August and September.

See contact people for your region below for more details.

6th May – Rotorua – contact Ann Lemon 0800 632 377

25th June – Tauranga – contact Jackie Bassett (07) 811 480

11th Aug – Hamilton – contact Tracey Larsen (07) 834 4745

6th Sept – Wellington – contact Catherine Entwistle (04) 232 4033 

17th Sept – Auckland – Arthritis/FM group – details to be arranged

Check in again, more information to follow.

Mini Seminar Dunedin – Dr Ros Vallings.

dunedin-community-house1MEISS (Otago and Southland) Inc.

Dr Ros Vallings is holding a Mini Seminar upstairs at the Dunedin Community House in Moray Place on October the 9th at 1 PM. Dr Vallings will be talking about her newly published book “Managing ME/CFS, A guide for young people” and she will also update everyone on the latest international research.  All welcome, afternoon tea provided.

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