Dr Ros Vallings is Speaking in Hawkes Bay on August 23rd.

Providing Strategies for the management of Chronic Fatigue Syndrome and its associated pain.

Dr Vallings will also bring you an update on the latest research

Date: Friday 23rd August  10.00 am

Venue: Eastern Institute of Technology (lecture room 2), 501 Gloucester St,  Taradale.

All Welcome!

ANZMES ME Awareness Day Activities for Members

ANZMES Writing and Poetry Competition

We are holding our Writing and Poetry Competition for members again this year. The subject is “Research and ME/CFS”.  Members are invited to write poems and essays on “What ME/CFS Research means to me?” As always we are looking forward to seeing your entries as the standard has been very high over the years. The Prize Winners entries will be included in our next Meeting Place Magazine.

First Prize – Free Subscription
2nd Prize $30 Voucher
3rd Prize $20 Voucher

Please email your entries in to

info@anzmes.org.nz

Or you can surface mail to:
P O Box 36-307
Northcote
Auckland

Karly Ryder’s Account of her Wellington Round the Bays Run to Raise Funds for ANZMES

Karly Ryder

Read Karly’s amazing story, which was not without incident – and then see the final total she raised – ANZMES is very grateful for all you have done for us! 

I was nervous arriving at the start line. The day before the race I split my big toenail, had terrible cramps, and caught a cold and throat thing from my son. I wasn’t feeling particularly positive going into the run. After a quick warmup and stretch I decided to read through all the donor comments from my givealittle page to pump myself up. It was just what I needed and then it was go time. I really enjoyed the run. It was hard, but I didn’t feel like I was overdoing it and I didn’t notice my sore toe, or sickness. I honestly just kept thinking about when I could barely get off the couch a couple of years earlier and how far I have come. It probably wasn’t the best subject matter because I could feel the emotions building and then, as I saw my husband, son and family, and crossed the finish line, I could barely breathe from all of the emotions. I caught my breathe, then cried, then hugged my supporters and cried some more. Turns out I ran a post sickness personal best time. I feel so proud to have done something helpful, but also to show that it does get better. I hope that my story at the very least resonates with CFS/ME sufferers and supporters, and provides a bit of hope that in time things will get better. And after you get better and run a race because now you can, you too can feel good and then go home and eat your weight in chocolate.

Karly’s effort for ANZMES clocked up an amazing $1,720.00 – WOW. See the full story about Karly’s struggle with ME/CFS and total raised on her givealittle page – And more photos below of her run.
https://givealittle.co.nz/fundraiser/slow-and-steady-wins-the-race

All Ready to Go
Karly sharing a proud moment with her son when it was all over.

Dr Rosamund Vallings One of 3 Finalists for the ‘Senior New Zealander of the Year Awards’

Dr Rosamund Vallings (Auckland) pictured with her certificate, was one of three finalists for ‘The Senior New Zealander of the Year’.
The overall winner was Dr Bill Glass a well deserved winner who was described as “The father of occupational medicine”.
Visit the link below to find our more information about the recipients of the awards
https://nzawards.org.nz/news/semi-finalists-confirmed-2019-kiwibank-awards/
or visit
https://www.nzonair.govt.nz/ 

Slow and Steady Wins the Race

Running to raise money for CFS sufferers following my own experience with the disorder.

https://givealittle.co.nz/fundraiser/slow-and-steady-wins-the-race

In October 2015 I got a virus. I had been working a total of 2 months at a new job, while also doing some freelance graphic design. I was sick for a week and then I seemed OK, just tired. Three weeks went by and I remember thinking It was crazy that I was still tired. Then the migraines started. I have suffered from migraines since I was a teenager, and although I often went to A&E because of them, up until this point they were reasonably infrequent. However now the migraines were occurring regularly. It was horrible. My energetic spark was draining out of me.

I was so tired I couldn’t bring myself to do anything. The word post viral chronic fatigue syndrome (CFS) was spoken during a doctors visit and that was it. No quick cure. Wait it out. Try doing small amounts of activity because it helps, but not too much because then you will spiral down again. Finding the balance was impossible. The game of energy see-saw began.

For me, my eyes, energy and the ability to cope with incoming stimuli were affected the most. My eyes seemed to become overworked with a fraction of what they used to do, which resulted in what felt like continuous migraines. I quit my new job, and my design business was put on hold indefinitely.

Getting out of bed was a struggle. However, I was lucky that I could because many with this affliction cannot. I had many months on the couch not able to do anything except listen to books or podcasts with the curtains drawn. I couldn’t watch TV, use any screens, read, or focus on anything for too long without the exhaustion overwhelming me. Having a shower was a major milestone for the day. The incoming stimuli was constantly overwhelming and if I tried to get out of the house it was too loud, too fast, too bright and always overwhelmingly debilitating.

At this point, as you can imagine, I started slipping into the darkness. Depressed that this was happening to me, bored, lonely, and anxious that I didn’t seem to be getting any better and It was always going to be like this. It wasn’t fair. The most common phrase sobbed into my husband’s chest was “I just want to be better again” .

Then I got pregnant… CFS and pregnancy don’t mix well. CFS and labour don’t mix well, and of course, having a small human to take care of while trying to survive chronic fatigue syndrome definitely doesn’t mix well. Thank goodness for my husband, family, and the fact that I have such amazing support.

It’s 2019 now. The journey was brutal, but my son is now 2 years old, and my game of energy see-saw has settled significantly. I still struggle with my eyes being tired, and have had to think about alternate career options that don’t involve a screen, but I can run. I run very slowly, but everytime I do it, It feels like magic that I can do it at all.

In February, three years and 4 months after I got sick, I will be slowly running Wellington Round the Bays 6.5km, and raising money for ANZMES, the Associated New Zealand ME/CFS society. I hope to raise funds to help other people who may be struggling with this “but you look fine” disorder.

I am running for those who can’t and to raise awareness, but ultimately I am running for myself and the magical feeling of getting my spark back.

Karly Thornton


International Expert Karl Morten Speaking in Auckland – Developments in Understanding the Science Behind ME/CFS

International Expert Karl Morten is Speaking in Auckland on the 12th of December on the Developments in Understanding the Science Behind ME/CFS.

ANZMES encourages members in the Auckland area to go along to hear this excellent speaker. PLEASE NOTE that the venue has been changed – see updated Flyer – 
RSVP’s to janet.m@meauckland.org.nz

ANZMES Annual General Meeting 10th November 2018.

Welcome to ANZMES

 

 

 

ANZMES Annual General Meeting will be held on Sat 10th of November at 1 pm in Dunedin Community House (Upstairs in the ‘Alexander McMillan Room’) at 301 Moray Place, Dunedin. Guest Speakers are Dr Ros Vallings (ME/CFS Specialist) speaking on the latest ME/CFS research and Dr Nicola Swain (President).  “All Welcome”. RSVP to info@anzmes.org.nz. or ring (03) 471 6203.

Dr Ros Vallings Itinerary for the next few months

 

 

Dr Ros Vallings Itinerary Below

 

 

6th October 2018
ME Auckland – Annual General MeetingQuestion and Answer session

Time:     1.30pm to 3.00pm

Venue:    Sandringham Community Centre Mainhall

Address: 18-20 Kitchener Rd, Sandringham, Auckland , 1025

(If you are able, please bring a shared plate for afternoon tea)

If you would like to know more details phone 0800 632 553
________________________________________________________________________________________

31st October 2018
Canterbury ME/CFS Group – Latest Research Update

Time: 1.30 pm

Venue: Abberley Park Hall,

Address: 55 Abberley Crescent, St Albans Christchurch

If you would like to know more details phone 03-365-5887
__________________________________________________________________________

2nd November 2018
Rotorua support group – Latest Research Update

Time:  10.30 am

Venue:  Parksyde Community Centre

Address:  7-9 Tarewa Place (off Pukuatua Street),  Rotorua.

If you would like to know more details phone. Tina: tina@ccisupport.org.nz
________________________________________________________________________
10th November 2018

ANZMES Annual General Meeting in DUNEDIN – Latest Research Update & Q & A Time
Also come and hear ANZMES President Dr Nicola Swain.

Time: 1 pm

Venue:  Alexander McMillan Room – Upstairs Community House

Address: 301 Moray Place, Dunedin

If you would like to know more details phone Debbie 03-4176203
_________________________________________________________________________

24th  November 2018
MEISS Annual General Meeting – Latest Research Update

Time: 1 pm

Venue:  Alexander McMillan Room – Upstairs Community House

Address: 301 Moray Place, Dunedin

If you would like to know more details phone Heather 03-471 6169
___________________________________________________________________________

 

Nelson Bays ME/CFS & FM Support Group – Latest Research Update
Yet to be finalised.

Tentatively the 11th or 12th February 2019 – (2 meetings – support group and GPs) –