Any treatments recommended on the following websites are not necessarily endorsed by ANZMES. It is stressed that the diagnosis of ME/CFS relies on clinical description/presentation and on exclusionary medical testing. It is imperative to seek qualified medical advice for evaluation. Any advice, either explicit or implied, is not intended to replace qualified medical advice. ANZMES does not accept any responsibility for any treatment undertaken.
From Bedridden to Board Game Creator: Kiwi Turns
Pandemic Memories into Family Fun – for a Cause
A decade confined to bed with ME/CFS was the setting for Vicki Price to capture New Zealand’s unique pandemic moments in a family- friendly board game – and now, COVID The Board Game (NZ Edition) is bringing Kiwis together while raising funds for vital research.
The game turns iconic lockdown memories – from baking sourdough bread and putting teddy bears in windows to the great toilet paper rush – into laugh-out-loud family challenges.
Designed for all ages, it invites players to relive, poke fun at, and ultimately connect over a shared chapter in New Zealand’s history.
But there’s more at stake than just bragging rights. 5% of profits will be donated to ME/CFS and Long COVID research – a cause deeply personal to Vicki and her daughter Symone, who were both severely affected with ME/CFS for over ten years.
“For years, I couldn’t move far from my bed, and the same has been true for my daughter” says Vicki. “When lockdowns came around, everyone got to experience a little of what we and many others severely affected with ME/CFS had been living with for years. Designing this game was a way to reconnect with people, bring families together through fun and laughter and give back to research that could change lives.”
The proceeds that the 5% of profits generates, will go to ANZMES to support Emeritus
Professor Warren Tate in his research into ME/CFS/Long COVID at the Dunedin School of
Medicine Pathology Department, where he is pursuing epigenetic code molecular signatures for diagnostic tests. Prof. Tate says he works “to support such a worthy group of people who have generally not had good support from clinical and social services to better understand and inform on these conditions – now including Long COVID.”
Self-published and self-distributed, the game has already sparked buzz among local families and board game enthusiasts. Vicki plans to have a te reo Māori version in the future. It is available to order now for delivery late September and through select NZ retailers.
Game Details
Name: COVID The Board Game (NZ Edition)
Players: 2-6
Ages: 5+
Price: $39.99 + GST
Availability: https://covidtheboardgame.com/
Cause: 5% of profits to ME/CFS & Long COVID RESEARCH.
High-resolution images and review copies are available on request.
Contact:
Vicki Price
orders@covidtheboardgame.com
027 399 8650
https://covidtheboardgame.com/
Could NZ limit long Covid? – Expert reaction from NZ Doctor website
https://www.nzdoctor.co.nz/article/could-nz-limit-long-covid-expert-reaction
ANZMES YouTube Channel on Research
https://www.youtube.com/channel/UCoHPLvzmvhutN-qVEW32WgA
[yotuwp type=”channel” id=”UCoHPLvzmvhutN-qVEW32WgA” ]
Professor Warren Tate is featured in Otago Daily Times discussing how ME/CFS is poorly recognised in New Zealand despite evidence
https://www.odt.co.nz/news/dunedin/chronic-fatigue-syndrome-poorly-recognised-nz-despite-evidence
ME/CFS-related Organisations
Frontiers Paediatric Primer
Frontiers in Paediatrics – ME/CFS Management in Young People
Massachusetts ME/CFS & FM Association – Nurse Patti’s Paediatric/School Nurse Blog
https://www.massmecfs.org/nurse-patti-s-blog
International Association for Chronic Fatigue Syndrome /Myalgic Encephalomyelitis
http://iacfsme.org/ME-CFS-Primer-Education.aspx
Fibromyalgia Research
Management Strategies for Primary Care Providers
ME Association UK
http://www.meassociation.org.uk/
ME Support UK
https://www.mesupport.co.uk/
Physios For ME
https://www.physiosforme.com
| www.cfids.org | |
| International Association for CFS/ME Research scientists, physicians, licensed medical healthcare professionals, and others interested in promoting the exchange of ideas for CFS/FM research and patient care | www.sacfs.asn.au |
| Open Medicine Foundation | https://www.omf.ngo/ https://www.facebook.com/OpenMedicineFoundation/ |
| Solve ME/CFS Initiative | https://solvecfs.org/ |
| FM-CFS Canada Holds a national patient registry for Canada, and provides free new educational materials for patients and physicians, and advocates the community’s needs to government | http://fm-cfs.ca |
| National ME/FM Action Network (Canada) Dedicated to advancing the recognition and understanding of ME/CFS) and FMS through education, advocacy, support, and research | www.mefmaction.net/ |
| Co-Cure CFS & FM Information Exchange Forum | www.co-cure.org |
| ME/CFS Society (South Australia) | www.sacfs.asn.au |
| ME/CFS/FM Assn of Queensland | www.mecfsqld.org.au |
| Emerge National Australian ME/CFS organisation | http://www.emerge.org.au/ |
.