This page is a quiet space for remembrance and solidarity, created by ANZMES for Severe ME Day. Each name or initial shared here represents a life profoundly changed by Myalgic Encephalomyelitis.
We honour those we have lost and hold in our thoughts those who continue to fight in the deepest isolation. They are the heart of our advocacy, and their experiences strengthen our urgent call for compassionate care, dedicated research, and meaningful recognition.
InMEmory
We honour and remember the following people lost to ME/CFS. Their fight, their story, and their memory endure. You are not forgotten.
Maeve Boothby-O’Neill, UK
Helen V, NZ
Sarah Buckel, Germany
Bridget O’Shea, USA
Maryline Hinot, France
Betty Mac Connel
Anne Steinberg
Silja
Sarah Miller
Sandra Menth
Mario Pinna, Italy
Heather Colman-McGill, USA
Jan Eric, Germany
Christine Paquette, Québec
Lily Silver, Ireland
Judith Schossböck, Austria
Lena Jones
Francis Martin, Basque Country
Michaela Lex, Germany
Bastien, Austria
Zascha Mann, NZ
Jan B, NZ
Denise Burgy
Marie-Joséphine Barrault, France
Nicolas Hugon, France
Anna Louise Midsem
Marcus Sedgwick
Jan Montgomery
Anna Fitzgerald Clarke
Annette O Bright
Sylvia Iversen
Amanda Miles
Beth Mazur, USA
Sohail Alibhai, UK
Graham McPhee, GB
Evette Léee, GB
Retha Viviers, South Africa
Lisa Norris, Halpert
Jana Huck, Basque Country
Brian Mac Carthy, GB
Rosemary B, NZ
Barry Cope, NZ
Paul Forster, NZ
Gérald Déséreau, France
Faustine Nogherotto, France
Denise Grassa
Amy Elizabeth Mac Laughlin
Maria Munro
Kara Jane Spencer
Christine Feistl
Karen Griffiths
Dirk Goffin, Belgium
Tammy Roy, USA
Benedikt, Germany
Michelle Lauris, USA
Saskia Willems, Belgium
Eimear Ford, Ireland
Faraz Fallahi, Germany
Denise Burgy, Basque Country
José Antonio de la Arada, Spain
InSolidarity
We hold in our collective thoughts the following people currently living with Severe or Very Severe ME. To those in the darkened rooms, we see you, we hear you, and we stand with you.
Wendy M, NZ
Eva, NZ
Sophie M, NZ
Nicole M, NZ
AJ, Sweden
Hollis, Alaska
Jann Hines
Maxime A, France
Véronique A, France
David Boucher, France
Hélène F, France
François D, France
Julien I, France
Johanna L, France
Jill L-R, France
Alexandra G, France
Myriam G, France
Laetitia Kerlo, France
Caroline M, France
Rosa P, France
Emmanuelle P, France
Emilie R, France
Julia S, France
Isabelle Z, France
Rhiannon, NZ
Tammy, NZ
Matt, T, NZ
Jaquie P, NZ
Anon, Akaroa, Canterbury, NZ
Marion Wilk, Germany
F Fahey
Roméo A G, France
Elena A, France
Hélène Cadot, France
Nessa D, France
Sabine D, France
Maxence K, France
Marie L, France
Alix G, France
Valérie G, France
Linda G, France
Laetitia L, France
Alicia Pallenchier, France
Nancy Smith, France
Nathalie P, France
Clémence R, France
Sylvie Testard, France
Karen, UK
Karina, NZ
John, NZ
Rochelle Y, NZ
Anil van der Zee, Netherlands
Gillian, NZ
Helen D, Waikato, NZ
Kylie, NZ
Caroline A, France
Fabiola B, France
Elliott C, France
Sarah E, France
Jérôme F, France
Florent L, France
Hugo L, France
Stéphanie G, France
Laure Guelle, France
Mélina G, France
Aymeric L, France
Vanessa Palix Dury, France
Stephan O, France
Charlotte R, France
Valérie R, France
Marc Y, France
Aubrey, NZ
Every name on this page is a powerful reminder of the human cost of this devastating disability. They are the #MillionsMissing, and they are the reason we will never stop fighting for change.
This tribute represents the names lovingly submitted by our community. It is a tribute, not an exhaustive list, and we hold in our hearts every single person impacted by ME/CFS, whether their name appears here or not. Thank you for joining us in this act of remembrance.
To add a Name:
This page is a living tribute. If you would like to add a name to be honoured or acknowledged here, fill in this form by 1st August 2025. Submissions are welcome at any time.
To the Unseen Pillars of Strength
On this Severe ME Day, we pause to honour not only those living in the shadows of Severe-Very Severe Myalgic Encephalomyelitis, but also those who stand beside them—quietly, steadfastly, and often invisibly.
To the carers, support workers, family members, and friends: thank you. You are the lifeline for those whose worlds have shrunk to four walls. You carry out acts of love and care that often go unnoticed—tending to fragile bodies, advocating in complex systems, and holding space for lives that have been profoundly altered.
Your compassion is a form of resistance. Your presence is a form of hope. And your care is a form of justice.
“A hero is an ordinary individual who finds the strength to persevere and endure in spite of overwhelming obstacles.” — Christopher Reeve
Today, we see you. We honour your sacrifices, your patience, and your unwavering commitment. You are not alone, and your work is not forgotten.
“Kindness can transform someone’s dark moment with a blaze of light. You’ll never know how much your caring matters.” — Amy Leigh Mercree
With deepest gratitude,
ANZMES and the ME/CFS Community