Release Date: 5th May 2025
New Zealand organisations Call for Action to Support 65,000 New Zealanders Living with ME/CFS
May 12th marks World ME Day, a global initiative to raise awareness of Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS) and challenge the myths that perpetuate stigma and hinder progress. This year’s theme, “Busting Myths with Facts,” highlights the urgent need to replace misconceptions with evidence-based understanding. Regional ME/CFS groups and organisations across New Zealand are joining forces to amplify this message and call for community support.
Debunking the Myths
Persistent myths about ME/CFS continue to marginalise patients and delay meaningful change. Here are some of the most common myths—and the facts that dispel them:
– Myth: ME/CFS is a mental health condition.
Fact: ME/CFS is a biological illness that disrupts the brain, immune system, and metabolism. It often begins after an infection, such as the flu or COVID-19.
– Myth: ME/CFS is just about feeling tired.
Fact: Exercise can worsen symptoms and lead to long-term deterioration. Pacing is the recommended approach.
– Myth: You can exercise your way to recovery.
Fact: The defining symptom is Post-Exertional Malaise (PEM), a severe worsening of symptoms after even minor exertion.
By sharing these facts, we can challenge stigma and foster understanding.
How You Can Help
New Zealand ME/CFS organisations are calling on communities to unite and take action this World ME Day:
- Raise Awareness: Share our social media posts, press releases, and website resources to spread the facts about ME/CFS. Use the hashtag #WorldMEDay [insert others] to join the conversation.
- Support Blue Tea Sunday: Host or attend a Blue Tea event to raise funds for your local or national ME/CFS organisation.
- Contact Your Local MP: Advocate for systemic change by sending a lobby letter urging better recognition, funding, and care for ME/CFS.
- Fundraise: Organise community events to support regional and national ME/CFS groups in their advocacy and research efforts.
- Unite Together: Join us in standing in solidarity with the 65,000 New Zealanders affected by ME/CFS. Together, we can create a brighter future.
- Find out more here: More info: https://anzmes.org.nz/world-me-day/myth-busting-world-me-day-2025/
Why It Matters
ME/CFS affects individuals of all ages, genders, and backgrounds, yet systemic gaps in healthcare and persistent stigma leave many without adequate support. Regional groups are working tirelessly to address these challenges, but they need your help to amplify their efforts.
By taking action this World ME Day, you can help ensure that ME/CFS is recognized as a serious biological illness and that those affected receive the care and dignity they deserve. Learn more at: anzmes.org.nz/world-me-day/myth-busting-world-me-day-2025/
Join Us
Let’s unite to challenge the myths, champion the facts, and drive change. For more information, resources, and ways to get involved, contact your local ME/CFS group. Together, we can make a difference.
ANZMES – National Advisory on ME
Complex Chronic Illness Support
MECFS Canterbury and West Coast
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