ANZMES represents the voices of people living with ME and associated conditions across Aotearoa New Zealand, ensuring their needs are understood, prioritised, and acted upon at every level of decision‑making. Our representation work spans government submissions, national classification and standards development, public campaigns, media statements, and practical templates the public can use to raise awareness or advocate for change.
ANZMES also represents New Zealand on the international stage, ensuring that the voices of people with ME and associated conditions are included in global conversations about research, clinical standards, disability rights, and public health policy. We collaborate with international organisations, research networks, and advocacy groups to share knowledge, contribute to global best practice, and bring the latest scientific and clinical developments back to Aotearoa. Our international engagement strengthens national advocacy, supports alignment with emerging global standards, and ensures that New Zealanders benefit from worldwide progress in understanding and treating ME.
On this page, you’ll find the key areas where ANZMES leads national advocacy — from shaping policy and clinical guidance, to responding to emerging issues in the media, to equipping communities with tools to engage confidently with MPs, agencies, and health providers. This is where you can see how we champion the rights, recognition, and wellbeing of people with ME every day.
For content prior to August 2026 contact the National Office. New content will be added here soon for you to explore:
Our Alliances
Aotearoa/NZ ME/CFS & LC Collective
Our Affiliated Partners
