anzmes

First World ME Day

by
image of the world from space, with text The first ever World ME Day May 12th 2022 worldmeday.org

First World ME Day and theme launched by alliance members

The World ME Alliance, a collaborative of organisations from across the globe, is launching World ME Day on 12th May this year. This new initiative aims to bring together organisations and unify efforts to raise awareness and campaign together on Myalgic Encephalomyelitis (ME). Through collective action, we will step closer to our goal of a world without ME.

World ME Day will build on the incredible efforts of advocates around events, such as ME Awareness Week and Chronic Immunological and Neurological Diseases (CIND) Awareness Day. By focusing on a single day and collaborating across many organisations, we aim to maximise our collective power.

The theme for the first year of World ME Day is #LearnFromME.

Read More: here

image of a lightbulb inside a chalk drawing of a thought bubble with the text #learnfromme world me day

What should the world #LearnFromME?

ME is a global health crisis – up to 30 million people are living with this disease worldwide, and when we take into account the effect on families, carers and friends too, the impact of this disease cannot be overstated.

But there is much to be learnt from this disease – from the willpower and determination of those living with it, to the incredible advocates working towards change, to an understanding that the most meaningful change will comes from high-quality research.

We want to use World ME Day to reach out to health professionals on a personal basis, build understanding of ME and take another step towards a world that understands ME.

Key facts for health professionals

  • People with ME have a lower average quality of life than all other diseases they have been compared to, including diabetes, cancers and heart disease.

Read more: here

Doctor Ros Vallings at the Public Meeting in Dunedin Colquoun Theatre 22 Sept, 2014.

by

Ros trip
Dr Vallings being introduced at the meeting.

Ros2
Dr Ros Vallings lecturing to the crowd.

Debbie
Debbie, ANZMES manager with resources ready to give out.

Doctor Ros Vallings lectured at the Colquhoun Theater in Dunedin on the 22nd September, 2014 to make a Podcast for Medical Students education at a public meeting.
Resources were given to Doctors and Medical Students who attended plus members of the public. There were over a large crowd who turned up on a cold snowy day to listen to the latest information from Ros.

ME Day

by

ME/CFS day is on the 12th of May.
This date was picked as it was the anniversary of Florence Nightingales Birthday.
Florence was thought to have had ME/CFS in the later  years of her life.
To celebrate ME day ANZMES has sent resources including latest Physicians booklets
Childrens Booklets and posters etc to all the Support Group through NZ.

An ANZMES survey of how ME/CFS impacts on sufferers has been compiled and thanks to Don Baken for his help with this. Massey University has helped with a media release of the survey.
Dr Ros Vallings is speaking on Monday Morning on TV about ME/CFS and the ANZMES survey.
Articles are in local newspapers that have been put in by support groups up and down NZ.
Here are some articles from the ME day release.

Phoenix Rising

Malcare WordPress Security